I have posted in the Hemochromatosis online support group on Daily Strength (.org) and scoured the web but have not found a support group or any activist group promoting awareness of this disease. I have found the Iron Disorders group but that covers a lot of territory and they don't seem to organize groups.
So, I have posted on craigslist to find some information.
http://sfbay.craigslist.org/sfc/grp/2351576057.html
Please forward this link or this website to anyone you know with this genetic disorder.
http://involuntarythinking.blogspot.com/?spref=fb
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